PACOP Reports & Publications

PACOP is a voluntary national quality improvement program that supports residential aged care homes to continuously improve the palliative and end-of-life care they deliver. 

PACOP Reporting

PACOP receives assessment data from participating aged care homes every six months, with reporting periods between January and June and July and December. PACOP provides data quality reports and data summaries to support data quality assurance processes.

PACOP IT and Data team analyses the data and produces PACOP report suites for individual participating aged care homes and organisational aggregate reports for providers to support quality improvement at all levels of the organisation.

PACOP maintains Human Research Ethics Committee approval for the use of longitudinal datasets, primarily for quality improvement and secondary for research purposes. Further information on the disclosure of PACOP data can be found in the PACOP Membership and Data Transfer agreement here.

 

The PACOP Report Suite includes:

  • A Dashboard Suite comprised of 4 dashboards simplifying reporting for clinical governance and accreditation processes and communication with residents, staff and board members.
  • A comprehensive PACOP Report featuring data insights on all assessment items and data points to inform plans for continuous quality improvement and evidence improvements in outcomes of care and care delivered.
  • A Benchmarking Supplement to monitor individual or organisational achievement against agreed standards of care against the benchmark and compared to the national average.
  • Supplementary Data Tables to support quality audit processes to identify opportunities for continuous quality improvement.

Download a copy of the Joy Glades Report Suite here:

 

Data-driven clinical quality improvement support

PACOP provides access to education and training to build skills in clinical data interpretation and quality improvement.

PACOP works with individual aged care homes and organisations to support the interpretation and understanding of reports, the development of quality improvement plans, and the ongoing measurement of outcomes and benchmarking of results to evidence improvements in care over time. Blended learning offerings include electronic resources and participation in virtual and in-person events.

 

PACOP National Benchmarking Program

PACOP commenced consultation with participating aged care homes and developed the national benchmark items in 2022. Annually, in May, PACOP provides the opportunity for participating aged care homes and providers to attend the National Benchmarking Workshop in Sydney. PACOP reviews benchmarking results and facilitates discussions to understand contributing factors and identify ongoing needs for support, education and quality improvement resourcing. Consultation with the sector continues as benchmark items are reviewed and, in time, raised to drive improvement aims across the sector.

Download a list of the current interim PACOP Benchmark Items here.

PACOP National Reports

PACOP currently releases a National Dashboard Suite to ensure data quality assurance and protect the anonymity of data from participating aged care homes. In time, PACOP will release a National Report Suite as participation and PACOP data submissions increase.

You can view a copy of the PACOP National reports below:

All peer-reviewed publications since 2020 are available below.

2021

Clapham S, Daveson B, Allingham S, Morris D, Blackburn P, Johnson C and Eagar K (2021) Patient-reported outcome measurement of symptom distress is feasible in most clinical scenarios in palliative care: An observational study involving routinely collected data. International Journal for Quality in Health Care, 33 (2): mzab075.

Daveson B, Allingham SF, Clapham S, Johnson CE, Currow DC, Yates P and Eagar K (2021) The PCOC Symptom Assessment Scale (SAS): A valid measure for daily use at point of care and in palliative care programs. PLoS One, 16 (3): e0247250.

Ding J, Johnson CE, Qin X, Ho SCH and Cook A (2021) Palliative care needs and utilisation of different specialist services in the last days of life for people with lung cancer. European Journal of Cancer Care, 30 (1): e13331.

Woods JA, Johnson CE, Allingham SF, Ngo HT, Katzenellenbogen JM and Thompson SC (2021) Collaborative data familiarisation and quality assessment: Reflections from use of a national dataset to investigate palliative care for Indigenous Australians. Health Information Management Journal, 50 (1-2): 64-75.

2020

Ding J, Johnson CE, Lee YCO, Gazey A and Cook A (2020) Characteristics of people with dementia vs other conditions on admission to inpatient palliative care. Journal of the American Geriatrics Society, 68 (8): 1825-1833.

Ding J, Cook A, Qin X, HO SCH and Johnson CE (2020) Palliative care needs and utilization of specialist services for people imminently dying with dementia: A national population-based study. International Journal of Nursing Studies, 109: 103655.

Woods JA, Johnson CE, Ngo Hanh T., Katzenellenbogen JM , Murray K, Thompson SC (2020) Symptom-Related Distress among Indigenous Australians in Specialist End-of-Life Care: Findings from the Multi-Jurisdictional Palliative Care Outcomes Collaboration Data