Partners and governance

NPCC works in partnership with PHNs to support implementation of structured palliative care needs assessment within general practice. The project provides evidence-informed processes, implementation insights, and evaluation frameworks to support local adaptation while contributing to national learning.

A growing number of PHNs have approached NPCC to explore opportunities to participate in the project and to implement GenPal within general practices in their regions. This interest reflects recognition of the need for structured, practice-ready approaches to earlier identification of palliative care needs in primary care.

Importantly, several PHNs have expressed willingness to support implementation and learning activities without requiring additional funding from NPCC, highlighting the perceived value of the project and its alignment with local and national priorities.

Our PHN Partners:

1. Capital Health Network ACT PHN
2. Eastern Melbourne PHN
3. Murrumbidgee PHN
4. WA Primary Health Alliance (WAPHA) Perth North, Perth South, Country WA PHNs
5. Coordinare PHN (Southeastern NSW Primary Health Network PHN)

Our General Practice Partner sites:

1. Ochre Bruce Medical Centre, Bruce ACT
2. Holt Medical Centre, Holt ACT
3. Doctors Care Clinic, Boronia VIC
4. Bundoora Medical Centre, Bundoora VIC
5. Cootamundra Medical Centre NSW
6. Redgum Medical Group, Corowa / Rutherglen / Howlong NSW / VIC
7. Quinns Mindarie Super Clinic, Quinns Rocks WA
8. Milton Family Medical Practice, NSW
9. Equilibrium Healthcare, Helensburgh NSW

The expert panel contributes to refining the project approach, strengthening clinical credibility, and ensuring alignment with contemporary palliative care practice. It provides expert guidance on quality improvement implementation and innovation in general practice, advising on best practice within the primary care sector. Panel members bring a diverse mix of clinical, academic and consumer expertise to inform the project’s direction and impact.

Experienced general practitioners working in palliative care have also expressed interest in contributing to NPCC as subject matter experts. Their involvement strengthens the clinical relevance of the project and ensures that GenPal continues to support, rather than replace, professional judgement in real-world practice.

This expert input contributes to refinement of the approach, supports clinical credibility, and helps ensure alignment with current palliative care practice.

The Research Leadership Group comprises senior academics and researchers with expertise in palliative care, general practice, implementation science, quality improvement, and health services research. The group provides high-level guidance on the design, analysis, and evaluation of the NPCC project’s research components. Members are Principal Investigators, NPCC research team, Principal Coordinating Investigator.

People with lived experience of serious illness and caring play a central role in shaping NPCC. Their insights inform how palliative care needs change over time and how assessment processes can better reflect what matters most to patients and families. Consumer and carer representatives ensure that real-world experiences remain at the forefront of the project. They provide practical perspectives on priorities, communication, care planning, and service coordination, helping to ensure the approach is patient-centred, accessible, and responsive to changing needs:

• Through ongoing participation, consumer representatives:
• Advise on project design, implementation and evaluation
• Provide feedback on tools, language and communication materials
• Identify gaps, barriers and unintended impacts
• Support alignment with patient and family priorities

If you are interested in being involved with PCOC in Primary Care Consumers, please contact Stacey Heer, Project Manager - stacey_heer@uow.edu.au