About PCOC

PCOC, funded by the Australian Government Department of Health, Disability and Ageing, aims to improve palliative care outcomes. It operates from the Australasian Health Outcomes Consortium (AHOC) at the University of Wollongong (UOW) and is a collaboration between UOW, Queensland University of Technology (QUT), and the University of Western Australia (UWA).

About PCOC

The ultimate measure of quality is the outcomes that patients, their families and carers achieve. PCOC is a voluntary program that is improving the quality and outcomes in palliative care in Australia, and internationally.

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There are many ways we know we are providing good care. We can measure our processes and display our thank you letters. But how do we know we are improving patient care? Show we do what we say we do. We focus on patient outcomes. The Australian Palliative Care Outcomes Collaboration, or PCOC, is the only source of routine palliative care outcome data in Australia and provides the facts about the effect of palliative care. The ultimate measure of quality is the outcomes that our patients and their families and carers achieve.

PCOC is a national voluntary program that is improving the quality and outcomes of palliative care in Australia by producing information to be used by clinicians and by local state and national providers of palliative care, to continually improve care for patients and their families.

PCOC measures outcomes for pain, including physical symptoms, psychological and spiritual needs, as well as family and carer outcomes. This provides evidence to mojito and prove the outcomes of care and drive continuous improvement in palliative care.

How does PCOC work? Let’s look at the six-monthly PCOC cycle. First, clinicians use the assessment tools to assess and respond to each patient’s needs. Then, PCOC reports the assessment data back to you. Benchmarking takes place so you can compare results. Then, PCOC facilitates feedback methods that identify achievements and areas for change. Feedback is an essential part of improvement. And then you start the PCOC cycle again.

PCOC is the world’s largest national routine point-of-care data collection for quality improvement, representing more than 80 per cent of all palliative care patients referred to specialist services in Australia, or 40,000 people each year, measuring outcomes for people as they move between home and hospital.

Does PCOC work? National results show statistically significant improvements over time in all symptom domains and in key palliative care problem domains. PCOC embeds and sustains two key frameworks into routine procedure and practice; the PCOC assessment framework and the quality improvement and change framework. The benefits of the assessment framework include; standard assessment and a common language when planning care or handing over in any care setting, baseline assessment and snapshot of patient needs, the ability to track and respond to patient symptoms, patients and their families and carers are part of the decision making, and care is driven by need. The benefits of the quality improvement and change framework include providing a structure for; evidence for the care being provided, outcomes triggering a review of processes, identifying areas for targeted quality improvement, identifying priorities for clinical and systems management change, and service planning. PCOC also helps with meeting requirements for accreditation by providing evidence of participation in quality improvement, and assists with local, state and national research on patient outcomes.

By firmly embedding a culture of quality improvement through the PCOC program, your service can measure and improve the care it provides, resulting in a better patient and family and carer experience and improved outcomes of care.

PCOC is a national palliative care project funded by the Australian Government Department of Health and Aged Care. The PCOC project is based at the University of Wollongong.

PCOC collects and analyses information from palliative care services across Australia about palliative care outcomes. PCOC analyses this information and sends reports to services every six months.

This information helps palliative care services to better understand if the care they provide is effective and appropriate to the needs of patients and their families and carers.

Organisations and researchers can also use PCOC information and reports to study palliative care outcomes. In this situation the researchers and organisations must follow strict criteria, including protecting the privacy of patients.

Services who are members of PCOC submit a prescribed data set against every episode of palliative care in their service. PCOC members have access to online, face-to-face, and virtual support through every stage:

Implementation:

PCOC provide guidance, resources, and support to assist with the integration of PCOC into the Organisation’s routine processes and practices (including for accreditation and quality improvement).

Collection:

PCOC provides free purpose-built online portals, which enables data-submitting members to:

  • Record their PCOC assessment data (for organisations without a compliant IT system)
  • Securely submit their own data
  • Access a summary of the submitted data to ensure their submitted data is complete
  • Access data quality report of their data to see where there are errors that need correcting

Analysis and Reporting:

PCOC provides service based six-monthly suite of benchmark reports including dashboard, outcome report, data summary and supplementary data. These provide analyses comparing the service’s data with National data from all other participating services.

Support for Education and Quality Improvement:

  • Access to PCOC improvement facilitators who can provide support on data collection processes, report interpretation and quality improvement initiatives
  • Education to relevant staff on the PCOC assessment and response framework, utilising the five PCOC assessment tools, and on understanding PCOC reports for quality improvement purposes
  • Communities of Practice as opportunities for networking and benchmarking to enable discussion, understanding, and use of PCOC data (reports) for driving quality improvement in patient outcomes.
  • Individual service meetings, run by PCOC improvement facilitators, provide an opportunity for services to discuss their data and outcomes with PCOC and identify target areas for quality improvement initiatives.

We respect and protect your privacy. We store all information on a secure database hosted at the University of Wollongong. The names and addresses of patients are not included in the information that palliative care services send to PCOC, or in PCOC reports or research.

You can contact pcoc@uow.edu.au if you do not want your information included in PCOC research.

For more information, talk to your nurse or doctor or email the PCOC team using the above address.

 

To become a PCOC member or submit an enquiry, please contact pcoc@uow.edu.au.


© PCOC UOW 2020. The intellectual property associated with a suite of resources on this website is owned by the Palliative Care Outcomes Collaboration (PCOC), University of Wollongong. PCOC has placed resources in the public domain and is happy for others to use them without charge, modification or development. These resources cannot be modified or developed without the consent of the University.

PCOC is a national palliative care project funded by the Australian Government Department of Health, Disability and Ageing.

Contact us


Palliative Care Outcomes Collaboration: c/o Australasian Health Outcomes Consortium, University of Wollongong, Innovation Campus, NORTH WOLLONGONG NSW 2500