Research and publications

The Palliative Aged Care Outcomes Program is dedicated to enabling systematic improvement of palliative care outcomes for people in residential aged care and their families through the delivery of our program modules and conducting evidence-based research. View our recommended resources and learn more about our publications below.

Resources & publications

The Australian National Aged Care Classification (AN-ACC): a new casemix classification for residential aged care

View the Rockwood Clinical Frailty Scale (CFS) (pdf)

  • The Clinical Frailty Scale is a global clinical measure of a person's level of vulnerability to poor outcomes.

Access the Aged Care Quality Standards (ACQS) resources

  • The ACQS are a set of 8 national standards arising out of the Australian Aged Care Quality and Safety Commission.

Download the Mapping Aged Care to PACOP resource (pdf)

  • Learn how PACOP supports services in meeting the ACQS standards

Download the PACOP-PCOC in Residential Aged Care presentation (pdf)

Download the PACOP-PCOC Wicking Model for Residential Aged Care presentation (pdf)

View past AHSRI Annual Reports

View the media release announcing the launch of PACOP

2021

Clapham S, Daveson B, Allingham S, Morris D, Blackburn P, Johnson C and Eagar K (2021) Patient-reported outcome measurement of symptom distress is feasible in most clinical scenarios in palliative care: An observational study involving routinely collected data. International Journal for Quality in Health Care, 33 (2): mzab075.

Daveson B, Allingham SF, Clapham S, Johnson CE, Currow DC, Yates P and Eagar K (2021) The PCOC Symptom Assessment Scale (SAS): A valid measure for daily use at point of care and in palliative care programs. PLoS One, 16 (3): e0247250.

Ding J, Johnson CE, Qin X, Ho SCH and Cook A (2021) Palliative care needs and utilisation of different specialist services in the last days of life for people with lung cancer. European Journal of Cancer Care, 30 (1): e13331.

Woods JA, Johnson CE, Allingham SF, Ngo HT, Katzenellenbogen JM and Thompson SC (2021) Collaborative data familiarisation and quality assessment: Reflections from use of a national dataset to investigate palliative care for Indigenous Australians. Health Information Management Journal, 50 (1-2): 64-75.

2020

Ding J, Johnson CE, Lee YCO, Gazey A and Cook A (2020) Characteristics of people with dementia vs other conditions on admission to inpatient palliative care. Journal of the American Geriatrics Society, 68 (8): 1825-1833.

Ding J, Cook A, Qin X, HO SCH and Johnson CE (2020) Palliative care needs and utilization of specialist services for people imminently dying with dementia: A national population-based study. International Journal of Nursing Studies, 109: 103655.

Woods JA, Johnson CE, Ngo Hanh T., Katzenellenbogen JM , Murray K, Thompson SC (2020) Symptom-Related Distress among Indigenous Australians in Specialist End-of-Life Care: Findings from the Multi-Jurisdictional Palliative Care Outcomes Collaboration Data