Find out how CHRISP can assist you with data and research queries, how to apply for data held by CHRISP in IHIP, and how to complete the Research Plan and Data Application Form.

How CHRISP can help you

Data

The purpose of CHRISP is to provide and support linked health data available on the Illawarra Health Information Platform (IHIP) for use in research. This includes, but is not limited to, routinely collected ISLHD health data. CHRISP can also assist with linking data from other sources.

Research

CHRISP’s Director, Academic Director and Clinical Director all have strong research track records and expertise in leading and guiding research projects. The CHRISP team includes a senior statistician Dr Luise Lago and a clinical epidemiologist Dr Victoria Westley-Wise. The Integration and Development Coordinator, Brendan McAlister, is responsible for the management of IHIP data, including linking of new data sources. 

The CHRISP team can help you with all aspects of your research:

  • development of your research proposal
  • advice on data availability and quality
  • clinical and statistical expertise on all issues relating to analysis and interpretation of data
  • dissemination of research findings (e.g. reports, journal articles and conference presentations)

Research conducted using IHIP data or services of the CHRISP team is subject to the approval by the CHRISP Executive Steering Committee.

How to apply for data

Complete the CHRISP Research Plan and Data Application Form

To apply for data from IHIP, you need to download and complete the CHRISP Research Plan and Data Application Form (docx). This form asks you for details of your research project and what IHIP data you require, by the completion of the appropriate Data Variable forms. View the available data variable forms.

If you wish to use data not already held on IHIP, CHRISP can still help. The application form includes a section where you can provide details of new datasets, bearing in mind that access to this data may take time and requires Data Custodian approval. It is also important to note, that research projects involving data-linkage always require a full ethics application. 

If you have further questions about the IHIP data held by CHRISP or the application form, we encourage you to contact us at any time.

Next steps

Following the completion of the CHRISP Research Plan and Data Application Form, please email it to us We will acknowledge your application within three working days, and you may also be contacted for clarification and/or recommendations for amendments to your application.

CHRISP will then forward your application to the CHRISP Executive Steering Committee, which will review your project for approval. For more information about the Executive Steering Committee, view the Governance page. 

CHRISP uses an ethically approved IHIP data linkage protocol, which means that you as a researcher will not have to handle identifiable data in most cases. However, if your research project requires full ethical approval, it is your responsibility to submit the application, noting that  the CHRISP team can provide advice regarding ethics applications using IHIP data

Once your project is approved and you have provided the CHRISP team with copies of your ethics approvals (when required ) and Data Custodian approvals (when appropriate), CHRISP will send you a CHRISP/IHIP Data User Agreement. This agreement includes details of the data CHRISP will provide, the conditions of use of the data and a Confidentiality Undertaking. Upon receipt of this agreement, signed by all members of your research team who will access the data, CHRISP can begin working on your project.

Download the CHRISP Research Application Process flowchart (pdf)

Research Plan and Data Application Form

To apply for data from CHRISP, you must download and complete the Research Plan and Data Application Form (docx).

Download the explanatory notes (pdf) for Part F of the form. The table below (included on page 2 of the application) describes the sections of the form and how they should be completed.

PartAggregate DataUnit Record DataUnit Record Data with Data Submission and Linkage
A: Basic project and applicant details Yes Yes Yes
B: Project details Only if required Yes Yes
C: Data description Yes Yes Yes
D: Access to aggregate data Yes No No
E: Access to unit level data No Yes Yes
F: Submission and linkage of additional data No No Yes
G: Data collection/entry using online forms No Only if required Only if required
H: Storage and retention Yes Yes Yes
I: Signature of applicant Yes Yes Yes

For each dataset you require in your project, you must complete a Data Variable form, as outlined below.

Data Variable forms

For each dataset below, we provide a basic description and links to two documents. The data variable form is the form which you should complete and include in your application. The data dictionary provides additional information about each variable and may be useful for you (for example, codeset definitions and notes about specific variables).

Emergency Department

Demographic, activity and some clinical information about patients presenting to NSW public hospital emergency departments is collected for the purposes of monitoring waiting times, planning and improving the quality of service delivery.

 

Download the Emergency Department data variable form (pdf)
(for use in applications)

Download the Emergency Department Data Dictionary (pdf)
(contains more detail, reference only)

Admitted Patient

Consists of patient demographic and administrative information related to admission and separation (Admissions, Transfers, Separations) recorded as the patient moves through the hospital. Also Disease Index information (DI) which is recorded later as the medical case notes are written up and completed and which relate to patient conditions diagnosed, diagnostic or treatment procedures performed and cancer notifications raised.

 

Download the Admitted Patient data variable form (pdf)
(for use in applications)

Download the Admitted Patient Data Dictionary (pdf)
(contains more detail, reference only)

Mental Health Ambulatory

The scope of the extract data records for the Community Mental Health Ambulatory feed is extended such that each record represents an activity. The attendance represents the patient contact. The activity represents an activity carried out during the contact (attendance).

 

Download the Mental Health Ambulatory data variable form (pdf)
(for use in applications)

Download the Mental Health Ambulatory Data Dictionary (pdf)
(contains more detail, reference only)

Mental Health Outcomes

The Mental Health Outcome and Assessment Tools (MH-OAT) state-wide initiative aims to improve the quality of mental health care in NSW.
The initiative consists of two major components:
(a) Standardised clinical documentation (a NSW Health initiative)
(b) Standardised outcome measures

 

Download the Mental Health Outcomes data variable form (pdf)
(for use in applications)

Download the Mental Health Outcomes Data Dictionary (pdf)
(contains more detail, reference only)

Medical Imaging

The activity data required from radiology systems relates to completed, billed status and requests.

 

Download the Medical Imaging data variable form (pdf)
(for use in applications)

Download the Medical Imaging Data Dictionary (pdf)
(contains more detail, reference only)

Non-Admitted Patient

Demographic and service related event information occurring when a patient interacts with an outpatient service unit. Patients are classified as non-admitted patients. Data available from 1 July 2012.

 

 

 

Pathology

The activity data required from pathology systems relates to completed, billed status and requests.

 

Download the Pathology data variable form (pdf)
(for use in applications)

Download the Pathology Data Dictionary (pdf)
(contains more detail, reference only)

Perinatal

The Perinatal Data Collection covers all births in Illawarra Shoalhaven Local Health District public hospitals. The dataset covers information through booking and antenatal visits, labour and birth, discharge and community care.

 

Download the Perinatal data variable form (pdf)
(for use in applications)

Download the Perinatal Data Dictionary (pdf)
(contains more detail, reference only)

Sub-Acute Non-Acute

The admitted sub-acute and non-acute patient episode data stream covers the additional data elements collected for admitted patients receiving sub-acute or non-acute care, which includes rehabilitation and palliative care. The data set includes the clinical assessment scores for sub-acute and non-acute patients.

 

Download the Sub-Acute Non-Acute data variable form (pdf)
(for use in applications)

Download the Sub-Acute Non-Acute Data Dictionary (pdf)
(contains more detail, reference only)

Theatre

The Operating Theatre data set covers the planning and provision of services provided within a NSW Health theatre suites and procedure rooms, including both surgical, medical and diagnostic procedures.

 

 

Download the Theatre data variable form (pdf)
(for use in applications)

Download the Theatre Data Dictionary (pdf)
(contains more detail, reference only)

Waitlist

The Ministry of Health has performance targets relating to the time patients wait for planned services that Local Health Districts and Specialist Health Networks are expected to meet. The Waiting Times Data Collection is a unit record data collection of all patients booked on the public hospital waiting list for planned and elective surgery/clinical care provided on an admitted patient basis.

 

 

Download the Waitlist data variable form (pdf)
(for use in applications)

Download the Waitlist Data Dictionary (pdf)
(contains more detail, reference only)