Links and Resources

Consultation Drafts

• Review of the National Statement on Ethical Conduct in Research Involving Humans (1999), first public consultation draft
  http://www.nhmrc.gov.au/issues/natstrev.htm

New and Existing Guidelines, Codes and Legislation

Australia

• The Australian Code-- Review Of The NHMRC/AVCC Statement And Guidelines On Research Practice (1997)
  http://www.nhmrc.gov.au/research/general/nhmrcavc.htm
• Ethical guidelines on the use of assisted reproductive technology in clinical practice and research, Australian Health Ethics Committee, Sept 2004
  http://www.nhmrc.gov.au/publications/synopses/e56syn.htm
• Research Involving Embryos and Prohibition of Human Cloning Bill 2002: http://www.health.gov.au/nhmrc/embryo/

Canada

• Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans, 1998 (updates 2000, 2002)
  http://www.pre.ethics.gc.ca/english/policystatement/policystatement.cfm
• Policy Research Initiative publications: Genomics, Health and Society: Emerging Issues for Public Policy; plus Symposium Report, 2004
  http://policyresearch.gc.ca/doclib/genomicbook_e.pdf
  http://policyresearch.gc.ca/doclib/Genomics_final_E2.pdf
• Bill C-6: An Act respecting assisted human reproduction and related research, March 2004
  http://www.parl.gc.ca/LEGISINFO/index.asp?
  Lang=E&Chamber=C&StartList=2&EndList=200&
  Session=12&Type=0&Scope=I&query=4096&List=toc

All

• HumGen: International Database on the Legal, Social, and Ethical Aspects of Human Genetics http://www.humgen.umontreal.ca/int/index.cfm?lang=1
• RMIT - Agencies, Legal Acts and Policy dealing with Embryonic Stem Cell Technology:
  http://www.rmit.edu.au/browse/Our%20Organisation/Faculties/Education,
  %20Language%20and%20Community%20Services/Departments/
  International%20and%20Community%20Studies
  /Research/;ID=t0twu7ztcimn1;STATUS=A

Stem Cells and Cloning

• Echo Education Services compiled a good Issue Outline on stem cells in 2002, which includes background information on both the science and the bioethical debates, Australian legislation explanations, a good compilation of relevant Australian newspaper articles,and links to other useful discussions on the topic: http://www.echoed.com.au/mediaissues/stemcell.htm
• Bioethics Today keeps an archive of news items on stem cells and cloning, among many other issues: http://www.bioethics-today.org/
• International Society of Stem Cell Research- includes information on the science, bioethical issues, and latest research: http://www.isscr.org

Democracy and Policy Process

• Citizens' Dialogue on Canada's Future - A 21st Century Social Contract (a research report): http://www.cprn.org/en/doc.cfm?doc=145
• Democracy, Ethics and Genomics: http://gels.ethics.ubc.ca/
• Novel Tech Ethics - Expanding the gaze of bioethics by considering the political, cultural, legal, and economic contexts in which novel genetic and neurological technologies are produced, applied and understood: http://www.noveltechethics.ca/